Building Capacity for Surveillance among U.S. Individuals with a Recent Stillbirth
Atlanta Hypertension Initiative 2024
MDI Connect
Background
Medical examiner and coroner offices conduct medicolegal death investigations (MDIs) to determine the cause and manner of sudden unexpected deaths. MDI offices play a crucial role in monitoring emergent and routine public health issues and collecting data that contributes to saving lives.
Increasing deaths from drug overdoses, suicides, homicides and more have resulted in MDI offices with record caseloads. Likewise, outdated methods of sharing MDI data, like faxing and paper-based systems, are inefficient and resource-intensive. Manual data entry at each agency may lead to errors and delay public health’s ability to use the data for response.
Through collaboration with data sharing partners, software vendors and others, MDI offices are implementing standards-based data exchange. Through the automation of workflows and integration of data sources, electronic information exchange is improving the timeliness and completeness of death investigation. Modernizing MDI data practices improves public health’s ability to monitor evolving health trends and create data-driven interventions to save lives without increasing burden on these offices.
MDI Connect can help.
MDI Connect is a forum for medical examiners’ and coroners’ offices, their data sharing partners and software vendors to work with their peers and subject matter experts to design, build and test standards-based data exchange practices. Using the data standard FHIR®—Fast Healthcare Interoperability Resources, pronounced “fire”—allows for both scalability and information sharing across partners from public health, public safety, toxicology and health systems using a defined set of tools. MDI Connect is dedicated to advancing solutions that simplify data sharing between MDI offices and their partners. Scalable solutions will reduce inefficiencies, decrease the amount of staff time needed in an MDI office to exchange data and minimize duplicative reporting processes. These solutions could also improve how toxicology results are reported and providing data to state vital records offices and other public health surveillance systems.
LEARN MORE
MDI Connect provides support.
A LEARNING COLLABORATIVE
Engage in peer-to-peer networking and learning activities. MDI offices and others share insights on data-exchange practices in virtual and in-person forums.
AN INCUBATOR FOR INNOVATIVE PROJECTS
Form data sharing partnerships to implement standards-based data exchange and design innovative solutions in a real-world setting.
TECHNICAL ASSISTANCE HUB
Discuss implementation challenges and receive support with standards-based data exchange and information technology adoption through office hours, virtual testing events and more.
Explore real-world examples of MDI data exchange projects currently being implemented.
Explore the playlist highlighting MDI data exchange projects.
MDI Connect collaborates.
Public health, public safety, health care and other agencies use MDI data daily to improve and coordinate efforts to save lives. Modernizing information technology can help build a mortality data ecosystem that provides more timely health surveillance without increasing the burden on MDI offices.
MDI Connect is also coordinating with the broader MDI community to build awareness of this data modernization initiative. Professional organizations such as the National Association of Medical Examiners (NAME) and the International Association of Coroners and Medical Examiners (IACME) actively support and promote MDI Connect to address the pressing need for streamlined data-sharing across multiple agencies.
MDI Connect innovates.
MDI offices and Case Management System (CMS) vendors are developing and testing data sharing solutions between various systems and stakeholders including:
- Electronic Death Registration System (EDRS)
- Toxicology Laboratory Information Management Systems (LIMS)
- National/State Violent Death Reporting System (N/SVDRS)
- State Unintentional Drug Overdose Reporting System (SUDORS)
- Overdose Detection Mapping Application Program (ODMAP)
- MDI CMS and other surveillance systems, data systems or public facing dashboards
- Organ Procurement Organization (OPO)
MDI Connect Participation and Funding Questions
1. How do I get involved with MDI Connect?
MDI Connect provides content and materials for participants to learn about data modernization, including standards-based data exchange, application programming interface (APIs) and other topics related to their projects. To learn more:
- Join the MDI Connect mailing list
- Contact an MDI Connect participating site
- Contact the CDC Foundation MDI Connect team
2. How can I apply for funding?
The CDC Foundation shares announcements on the Requests for Proposals page. Join the MDI Connect mailing list for announcements about future funding opportunities if available.
3. Do I have to be an active awardee to participate?
No. While most of the participating sites in MDI Connect are funded projects, assistance is also provided to MDI offices that are working on similar data exchange cases but may have different funding sources. MDI Connect collaborates with Georgia Tech Research Institute (GTRI) and others to provide technical assistance.
4. We participated in the past and have ideas for new use cases. Can we be funded again?
Each funding announcement has its own conditions and restrictions. The opportunity to participate in additional grant-funded projects with CDC Foundation will be contingent on funds received from the CDC and other donors. Future opportunities may allow previously funded MDI offices to submit applications for funding.
This project is supported by the Centers for Disease Control and Prevention (CDC) of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,726,393.00 with 57 percentage funded by CDC/HHS through Medical Examiner and Coroner Data Modernization Implementer's Group and $2,097,363.00 and 43 percentage funded by non-government source(s). The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, CDC/HHS or the U.S. Government.
Community Health Action Network – Phase 1a
Federal Grants Management Training Series
Accelerating the Impact of Erase Maternal Mortality
Improving Maternal-Infant Health & Health Care
Soon-to-be parents and their babies deserve the healthiest start possible. But maternal and infant deaths in the United States are still higher than any other developed nation, while black women are dying at twice the rate of white women. Public health is taking on these issues through several promising programs.
Perinatal Quality Collaboratives (PQCs) are networks of multidisciplinary teams made up of clinicians, providers, public health leaders, patients, families and others who work together on plans to improve health outcomes for pregnant women and infants in the U.S. Every state, as well as Washington, DC, has a PQC that meets to identify health care processes and clinical practices that could be strengthened and then begins to implement quality improvement (QI) initiatives, using the best available methods to effect change as quickly as possible. QI initiatives advance evidence-based clinical practices within health care centers and systems across states and across the nation. Learn more about how PQCs are working together to improve maternal outcomes.
The CDC Foundation, in partnership with the U.S. Centers for Disease Control and Prevention (CDC), is also helping PQCs learn how to evaluate their QI initiatives to make sure they’re meeting their goals. The webinar series below is designed to advise PQC staff and partners on how to perform evaluations, plan for and implement evaluations and ensure the findings are put into practice to improve QI initiatives.
CDC-funded PQCs can also register for targeted group assistance through office hours.
Webinar Series for All PQCs
Webinar 1: Introduction to Evaluation (Jan 25, 1:00 pm EST)
Webinar 2: Evaluation Planning and Implementation (March 5, 11:00 am EST)
Webinar 3: Evaluation Data Collection (April 9, 1:00 pm EST)
Webinar 4: Using Evaluation Findings (May 21, 1:00 pm EST)
Registration
Optional Office Hours for CDC-Funded PQCs Only
Office Hours Session 1 (Feb 6, 1:00 pm EST)
Registration
Office Hours Session 2 (March 19, 3:00 pm EST)
Registration
Office Hours Session 3 (May 7, 1:00 pm EST)
Registration
Office Hours Session 4 (June 11, 1:00 pm EST)
Registration
Leveraging CILs to Increase Vaccines for People with Disabilities
Approximately 61 million adults living in the US have a disability, representing nearly 26% of the adult population. Disability alone may not be related to increased risk for contracting COVID-19. However, some people with disabilities may be at increased risk for contracting COVID-19 based on where they live, and/or difficulty complying with mitigation strategies. The presence of underlying medical conditions puts others at increased risk for severe illness. Vaccinating people with disabilities poses unique challenges including ensuring physical accessibility of vaccination sites. To address these challenges, successful vaccine programs for people with disabilities will best be achieved through collaboration with disability-led organizations who are subject matter experts and recognized leaders in their communities. The CDC Foundation received federal funding to build the capacity of community-based organizations, specifically Centers for Independent Living (CILs), in a minimum of 37 jurisdictions and provide tools, resources, and support to ensure equitable access to COVID-19 vaccines for people with disabilities. The CDC Foundation partnered with Able South Carolina to identify and provide grants to CILs, as well as develop their capacities through training and webinars. The CDC Foundation also partnered with NACCHO to provide technical assistance to CILs on engaging with their local and state health departments as well as providing resources to health departments on improving access to vaccines for people with disabilities.
This project has resulted in the Partnership Guide for Centers for Independent Living and State and Local Health Departments, which is a resource to promote and guide collaborations between centers for independent living and state and local health departments to better support the health and wellbeing of people with disabilities.
This project Leveraging CILs to Increase Vaccines for People with Disabilities was supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $7,220,000 with 100 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.
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