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Accelerating the Impact of Erase Maternal Mortality

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Accelerating the Impact of Erase Maternal Mortality
United States of America
To accelerate innovation and extend impact on community-based actions emphasizing cardiovascular conditions and other leading causes of maternal mortality.
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Improving Maternal-Infant Health & Health Care

Soon-to-be parents and their babies deserve the healthiest start possible. But maternal and infant deaths in the United States are still higher than any other developed nation, while black women are dying at twice the rate of white women. Public health is taking on these issues through several promising programs.

Perinatal Quality Collaboratives (PQCs) are networks of multidisciplinary teams made up of clinicians, providers, public health leaders, patients, families and others who work together on plans to improve health outcomes for pregnant women and infants in the U.S. Every state, as well as Washington, DC, has a PQC that meets to identify health care processes and clinical practices that could be strengthened and then begins to implement quality improvement (QI) initiatives, using the best available methods to effect change as quickly as possible. QI initiatives advance evidence-based clinical practices within health care centers and systems across states and across the nation. Learn more about how PQCs are working together to improve maternal outcomes.

The CDC Foundation, in partnership with the U.S. Centers for Disease Control and Prevention (CDC), is also helping PQCs learn how to evaluate their QI initiatives to make sure they’re meeting their goals. The webinar series below is designed to advise PQC staff and partners on how to perform evaluations, plan for and implement evaluations and ensure the findings are put into practice to improve QI initiatives.

CDC-funded PQCs can also register for targeted group assistance through office hours.

Webinar Series for All PQCs

Webinar 1: Introduction to Evaluation (Jan 25, 1:00 pm EST)

Slides [PDF]

 

Webinar 2: Evaluation Planning and Implementation (March 5, 11:00 am EST)

Slides [PDF]

 

Webinar 3: Evaluation Data Collection (April 9, 1:00 pm EST)

Slides [PDF]

 

Webinar 4: Using Evaluation Findings (May 21, 1:00 pm EST)

Slides [PDF]

Optional Office Hours for CDC-Funded PQCs Only

Office Hours Session 1 (Feb 6, 1:00 pm EST)
Registration

Office Hours Session 2 (March 19, 3:00 pm EST)
Registration

Office Hours Session 3 (May 7, 1:00 pm EST)
Registration

Office Hours Session 4 (June 11, 1:00 pm EST)
Registration

Evaluation Resources

These additional resources provide further opportunities to learn about and implement evaluations:

Framework for Program Evaluation in Public Health
This complete guide from CDC outlines steps and standards with an emphasis on practical, ongoing strategies.

National Network of Perinatal Quality Collaboratives (NNPQC)
This organizational website provides resources and information specifically targeted to PQCs.

Evaluation Education and Programs
The American Evaluation Association offers training courses and educational tools to professionally develop evaluation skills.

Better Evaluation
This robust knowledge platform is built and maintained by the Global Evaluation Initiative.

Qualitative Methods: Coding & Data Analysis (University of Washington)
This information guide includes a presentation slide set explaining qualitative data, how to analyze it and a few tools to use to support analysis.

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Improving Maternal-Infant Health & Health Care
United States of America
To build capacity and provide field support for maternal-infant health (MIH) efforts by enhancing training and technical assistance resources that support organizations such as perinatal quality collaboratives (PQCs) to improve quality care.
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Leveraging CILs to Increase Vaccines for People with Disabilities

Approximately 61 million adults living in the US have a disability, representing nearly 26% of the adult population. Disability alone may not be related to increased risk for contracting COVID-19. However, some people with disabilities may be at increased risk for contracting COVID-19 based on where they live, and/or difficulty complying with mitigation strategies. The presence of underlying medical conditions puts others at increased risk for severe illness. Vaccinating people with disabilities poses unique challenges including ensuring physical accessibility of vaccination sites. To address these challenges, successful vaccine programs for people with disabilities will best be achieved through collaboration with disability-led organizations who are subject matter experts and recognized leaders in their communities. The CDC Foundation received federal funding to build the capacity of community-based organizations, specifically Centers for Independent Living (CILs), in a minimum of 37 jurisdictions and provide tools, resources, and support to ensure equitable access to COVID-19 vaccines for people with disabilities. The CDC Foundation partnered with Able South Carolina to identify and provide grants to CILs, as well as develop their capacities through training and webinars. The CDC Foundation also partnered with NACCHO to provide technical assistance to CILs on engaging with their local and state health departments as well as providing resources to health departments on improving access to vaccines for people with disabilities.

This project has resulted in the Partnership Guide for Centers for Independent Living and State and Local Health Departments, which is a resource to promote and guide collaborations between centers for independent living and state and local health departments to better support the health and wellbeing of people with disabilities.

View this guide en Español

 

This project Leveraging CILs to Increase Vaccines for People with Disabilities was supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $7,220,000 with 100 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.

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a collage of people with various disabilities living independently
United States of America
To support Centers for Independent Living (CILs) in increasing access to COVID-19 vaccination.
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Medicolegal Death Investigation Fast Healthcare Interoperability Resources Implementation Collaborative

Medicolegal death investigations (MDIs), conducted by medical examiner and coroner offices, are crucial to understanding causes of deaths, monitoring evolving health challenges and ultimately saving lives. Funding and resources increase the ability for MDI offices to collaborate with internal and external data sharing partners to send and receive this integral information. 

To transform the MDI data landscape and reduce the resources needed by an MDI office to collaborate with data sharing partners, CDC is prioritizing data modernization. Fast Healthcare Interoperability Resources (FHIR®) is a standard created for healthcare data exchange. This standard can be used to achieve bi-directional exchange of data between MDI systems and data sharing partners. FHIR® improves data exchange while simultaneously reducing the burden of data entry.

During this initiative, selected MDI offices work collaboratively with other MDI offices, data sharing partners, vendors and FHIR® subject matter experts to use FHIR®-based data exchange to improve the efficiency of data transmission between MDI offices and data sharing partners.

Modernizing MDI data practices improves MDI office’s ability to investigate deaths, improves public health’s ability to monitor evolving health trends and creates data driven interventions to save lives without increasing burden on these offices. 

Our collaborating sites: 


This program is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,726,393 with 100 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, CDC/HHS or the U.S. Government.

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Chronic Diseases
Medicolegal Death Investigation FHIR Implementation Collaborative
United States of America
To support Medicolegal Death Investigation offices and their data partners in exploring, testing and innovating data modernization strategies.
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Strengthening Partnerships between Public Health and Community-Based Organizations

The Recommendations 

Developed by the CDC Foundation in partnership with HIP and supported by Kaiser Permanente National Community Benefit Fund at the East Bay Community Foundation, the report offers a set of transformative and inclusive recommendations to strengthen relationships between governmental public health and communities, framed within The Spectrum of Community Engagement to Ownership, a framework to increase community ownership of public decisions.

 

Download the Recommendations for Strengthening Partnerships between Health Departments and Community-Based Organizations


Download the executive summary of Recommendations for Strengthening Partnerships between Health Departments and Community-Based Organizations


Download the one-page overview of the recommendations

Community organizations and community members, through their deep-rooted partnerships with state and local health departments, health care organizations and other organizations, come together to address the unique needs of each community.

The COVID-19 pandemic underscored a need for renewed emphasis on building strong relationships between public health and communities to systematically reduce health inequities. Therefore, the CDC Foundation is leading a project to develop inclusive, community-centered recommendations that will enable public-private, multi-sector collaborations and systems-level responses to ongoing and emerging public health challenges.

With support from the Kaiser Permanente National Community Benefit Fund at the East Bay Community Foundation and in partnership with Human Impact Partners, the CDC Foundation is developing a set of recommendations and roadmap for building and strengthening partnerships between public health agencies and community-based organizations (CBOs).

Read the Recommendations

The final recommendations aim to support public health agencies in:

  • Cultivating relationships with CBOs to better prepare and respond to future public health emergencies and to pursue more equitable solutions in routine practice.
  • More effectively promote community health objectives.
  • Sharing power with CBOs to address historical disenfranchisement in decision making.

 

Co-Designing Recommendations

To be relevant and actionable, our final recommendations and roadmap for strengthening public-private collaborations must reflect the varied experiences of public health department and CBO partnerships from across the U.S. To do so, we engaged representatives from a diverse group of organizations in a range of activities, including:

  • Public health department and CBO 1:1 interviews.
  • Consensus-building convenings to define a set of recommendations and an initial roadmap for how to implement recommendations
  • Insight sessions across the U.S. with public health departments and CBOs to refine the recommendations and roadmap.

 

Our Partners

Human Impact Partners

National Partners:

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walkable community
United States of America
To work with local, state and national partners and develop a set of recommendations in the form of a roadmap on how to optimize the interface between public health and community-based organizations (CBOs) to best prepare future responses to public health emergencies and effectively promote broader community health objectives, including achieving health equity and overall community health and wellbeing.
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Monitoring the Global and Domestic Tobacco Epidemic

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anti-smoking
Monitoring the Global & Domestic Tobacco Epidemic
United States of America
To monitor the global tobacco epidemic as well as enhance capacity for tobacco control programs in high-burden tobacco use countries and to measure reductions in e-cigarette use by working to include company retail sales data in national tobacco surveys.
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Improving Engagement in Community Level Data Collection

We are excited to launch a collaborative report highlighting promising actions public health practitioners can take to shift surveillance systems to address community needs. The report will launch in May 2024. 

 


 

Improving Community Engagement in Design, Collection and Use of Community-Level Data to Address Structural Determinants of Health

To improve health outcomes for all, it is essential for the community to be at the forefront of public health data. Powered by five local communities, this program gathers communities’ perspectives on the use of survey data to improve health.

Data Equity Coalitions in Atlanta, Detroit, Durham, Pittsburgh and San Antonio are hosting focus groups and other feedback opportunities for their communities. By leveraging the communities’ feedback, this project aims to increase access to local measures of social determinants of health and to improve the reach of surveys, particularly among populations historically excluded from participating.

The five Data Equity Coalitions—local organizations partnering with communities to improve the availability and use of data that addresses local priorities for health and wellbeing—are tailoring approaches to their community needs and gathering local perspectives through:

Focus groups: Gain community perspectives and input on processes for collecting and sharing survey data
Survey enhancements: Review potential new survey questions using community interviews
Community outreach: Try new ways of administering surveys to increase participation
Data collection: Gather community input on existing and emerging data needs
Information synthesis: Analyze qualitative data from focus groups and interviews to coalesce findings across the data coalitions and communities

Project Goals:

1. INVEST
Invest in health measures and data that are relevant to communities and the outcomes communities care about

2. COLLECT
Collect data that is prioritized by communities and provide data in ways that support efforts to improve health locally

3. DEVELOP
Develop inclusive methods to interpret and share health data that increases trust in and use of data

4. FACILITATE
Facilitate connections between surveys and communities, and infuse community perspectives into data processes


Our Partners:

CDC's National Center for Chronic Disease Prevention and Health Promotion (NCCDPH)

Local Data Equity Coalitions:

Research Partner Organization:

The National Alliance against Disparities in Patient Health (NADPH) —Woodbridge, VA

Learn more about our partners.

 

This program is made possible through funding from the Robert Wood Johnson Foundation. The views expressed here do not necessarily reflect the views of the Foundation.


 

Surveys and Platforms

This project leverages processes and information from various public health surveys. Below are some of the surveys and platforms discussed:

PLACES
The Population Level Analysis and Community Estimates (PLACES) website provides user-friendly health measure estimates for all U.S. counties, census tracts and ZIP Codes.

BRFSS
The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect health data about U.S. residents. BRFSS collects data from over 400,000 adult interviews annually in 50 states, Washington, D.C., and three U.S. territories.

PRAMS
The Pregnancy Risk Assessment Monitoring System (PRAMS) collects data on attitudes and experiences before, during and shortly after pregnancy. PRAMS covers eight of 10 U.S. births and aims to improve birthing persons’ and infant health.

 

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a collage of many people of all ages and ethnicities
Improving Engagement in Community Level Data Collection
United States of America
The goal of the Improving Engagement in Community Level Data Collection program is to improve the nation's access to community-relevant and nationally significant data that measure health and equity.
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Monitoring Health Outcomes of Assisted Reproductive Technology

 

 
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chronic
Monitoring Health Outcomes of Assisted Reproductive Technology
United States of America

 

 
To provide research support for analysis of outcomes of assisted reproductive technologies.
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Hear Her Maternal Health Campaign

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Hear Her campaign image
Hear Her Maternal Health Campaign
United States of America
To expand the reach of Hear Her resources for healthcare professionals and American Indian and Alaska Native communities in the United States and conduct exploratory formative work to determine the feasibility of a new segment of the campaign to reach a global audience.
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Transforming Public Health Data Systems to Advance Health Equity

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community health
Transforming Public Health Data Systems to Advance Health Equity
United States of America
To provide integrated stewardship, governance and communication in order to transform and modernize public health data systems to better prevent, detect and respond to public health threats and promote equitable community wellbeing.
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